19 June 2013.. first time masuk ward oncology..these past few weeks, i thought my son was having the worst disease, neuroblastoma.. lemme share with u the description and stages for further understanding..
Cancer begins when normal cells change and grow uncontrollably, forming a mass called a tumour. A tumour can be benign (noncancerous) or malignant (cancerous, meaning it can spread to other parts of the body). Neuroblastoma is a solid cancerous tumour that begins in the nerve cells of infants and young children. It can start in the nerve tissue near the spine in the neck, chest, abdomen, or pelvis, but it most often begins in the adrenal glands. The adrenal glands are located on top of both kidneys and make hormones that help control body functions, such as heart rate and blood pressure.
Neuroblasts are immature nerve cells found in unborn babies. Normal neuroblasts mature into nerve cells or adrenal medulla cells (cells found in the center of the adrenal gland). A neuroblast that does not mature properly can continue to grow, leading to neuroblastoma. However, babies are sometimes born with small clusters of neuroblasts that eventually mature into nerve cells and do not become cancer.
Neuroblastoma develops most often in infants and children younger than five. It can form before the baby is born and can sometimes be found during a prenatal (before birth) ultrasound. Most often, however, neuroblastoma is found after the cancer has spread to other parts of the body, such as the lymph nodes (tiny, bean-shaped organs that help fight infection), liver, lungs, bones, and bone marrow (the spongy, red tissue in the inner part of large bones).
The following is a brief summary of each INSS stage:
Stage 1: The tumor can be removed completely during surgery. Lymph nodes removed during surgery may or may not contain cancer, but other lymph nodes near the tumor do not.
Stage 2A: The tumor is located only in the area it started and cannot be completely removed during surgery. Nearby lymph nodes do not contain cancer.
Stage 2B: The tumor is located only in the area where it started and may or may not be completely removed during surgery. Nearby lymph nodes contain cancer.
Stage 3: The tumor cannot be removed with surgery. It has spread to regional lymph nodes (lymph nodes near the tumor) or other areas near the tumor, but not to other parts of the body.
Stage 4S: The original tumor is located only where it started (as in stage 1, 2A, or 2B), and it has spread only to the skin, liver, and/or bone marrow (in infants younger than one). The spread to the bone marrow is minimal (usually less than 10% of cells examined show cancer).
Stage 4: The original tumor has spread to distant lymph nodes (lymph nodes in other parts of the body), bones, bone marrow, liver, skin, and/or other organs (except for those listed in stage 4S,above).
Ini some of the information that i could share..u boleh do ur own research if u like.. dia macam ni.. kalau stage 1,2 or 4s.. memang selamat lah.. means the cancer is in save stage.. stage 3 tuh is worrying lah.. stage 4, of course u all know la kan... stage 4s tuh is actually yang paling selamat in my understanding sebab tak perlu treatment or surgery.. cuma observe dan buat check up every other month jer.. so hubby and i memang harap aisy cuma stage 4s..
So on our first day of admission kat onco ward tuh, memang rasa terkejut sangat sebab tengok all the children there yang serba botak.. kurus.. lesu.. walaupun ade yang ceria jugak tapi this is a whole new thing to us.. memang in my entire life.. this image is like a new picture that i have never seen and never even thought about.. hubby tengok i..i tengok dia.. Ya Allah.. sangat menyayat hati..
Ok..dah dapat bilik and katil.. ward onco lain dari ward surgical.. ward onco ade bilik untuk 4 katil and semua ber-aircond.. i guess maybe sebab budak2 ni buat chemo.. so mestilah kena sejuk kan since chemo tuh sangat panas..
Jadi kitaorg pun tunggu doctor datang.. who came around 11am kot.. shes one of the specialist kat situ.. she checked on Aisy and said that Aisy could be a stage 4s since he doesn’t show any bad signs and he is cheerful (hubby n i dah tersangat happy with this possibility!!). So they’re gonna do the BMA untuk tengok staging.. ok dia macam ni.. untuk buat staging takes a lot of tests and scan sebenarnya... BMA, MIBG scan, CT scan, MRI, bone scan dan macam2 lagi.. masa time ni kitaorg tak tahu pun.. kitaorg ingat lepas buat BMA tuh.. terus dah boleh tau exactly staging nyer mcm mane.. biaselah.. first timer..
Then bila petang skit.. ada skin biopsy experts datang jumpa kitaorg sebab doctor onco informed them of dia punya nodule yang kat left chest tuh.. remember i told u guys bout this? If u’re not sure, u can check my entry entitled “when we first felt it”. So they also wanted to do a biopsy on that lump jugak but when they checked, apparently benda tuh is not skin deep.. it is deeper than that.. so instead doctors decided to do a biopsy excision..bermaksud they take out the whole thing instead of amik sample jer.. and study the lump.. so we said okay since kitaorg pun nak tau ape kat dada dia tuh.. and its better to just take out the whole thing kann..buatpe nak tinggal2.. since benda tuh pun benda foreign..
So the next day arrived.. aisy macam biase lah..kena puasa from 3am.. then kul 9am pegi dewan bedah.. this time ayah aisy pulak yg teman aisy masuk dalam.. he was again given the general anaesthetic (GA) for the procedure.. kali ni kurang risau sebab dah tau yg dia tak allergic pada GA kan.. but still worried of course.. anak masuk OT.. sape yg tak risau.. so tunggu ayah dia keluar dari OT room.. tetiba i saw him coming out bursting in tears.. alahai.. i immediately hugged him.. and he cried n cried.. of course i pun nangis lah.. sebab boleh dapat rasa kesedihan yg sama.. Especially when i see my strong hubby nangis.. and dia plak bukan jenis yg nangis.. lagi la i sedih tengok.. then after a while, dia pun calm down.. then we chatted and prayed aisy okay kat dalam tuh.. hati tenang sikit daripada the first time but still... dup dap dup dap jantung.. nervous.. risau.. then i think about 12pm dah settle semuanya.. wahh cepatnya.. aisy pun stable.. Alhamdulillah.. thank you Ya Allah.. so bawak la dia balik ke ward.. bagi dia susu n then dia tido sebab masih high kena GA tuh.. then bila dia dah bangun.. segar je.. terus merangkak rangkak.. hehehe
then about 3pm, doctor came.. tgk semua okay.. then dia kata boleh balik...huh?????? boleh balik??? Biar betul doctor nih.. baru je habis procedure kot?? But doctor dgn nonchalantly, cakap.. yea, why not? Since aisy okay jer.. hmm .. ape lagi.. terus packing n blah lerr hehehe.. as usual, we had to wait for the call next week to see what is in store for us..
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