Learn more about the treatment you put your child through

Killer cancer treatment: How toxic chemotherapy kills both cancer cells and cancer patients

"If cancer specialists were to admit publicly that chemotherapy is of limited usefulness and is often dangerous, the public might demand a radical change in direction—possibly toward unorthodox and nontoxic methods, and toward cancer prevention. ...The use of chemotherapy is even advocated by those members of the establishment who realize how ineffective and dangerous it can be." - Ralph W. Moss, author, The Cancer Industry

Imagine that you own a house that is absolutely perfect and beautiful with all the necessities, except that it has some rodents inside. When you call the exterminators, they tell you that they won't be able to target just the rodents, as these rodents are of an especially stealthy breed. They tell you they're just going to set off a series of explosions in your house that may kill the rodents. They warn you, "Oh yeah, it may destroy some of your house in the process, but, hey, you want those rodents out of your house, right?" There's probably no way you would allow that; instead, you would do some research and find other, more specific and less generally destructive ways of getting rid of the rodents.

The allegorical exterminators' logic makes no sense; yet, it's the same logic that doctors who prescribe chemotherapy follow. Like the exterminators' explosions, chemotherapy doesn't exclusively target cancer cells; it also harms your good cells, destroying some of your body – your "house" – in the process. As a result, many chemotherapy patients lose their hair, develop immune deficiencies, lose weight and vomit. Chemotherapy poisons your body as a whole in an attempt to kill the cancer cells before the "treatment" brings your body to an unrecoverable state.

As Gary Null and James Feast write, "(After chemotherapy,) the hope is the cancer is going to be totally dead and you are only half dead and recover." Unfortunately, some people are more than "half dead" after chemotherapy and remain damaged for the rest of their lives, no matter how long or how short that life may be. They never realize that according to many alternative health practitioners, there are safer ways of combating many types ofcancer.

Former chemotherapy patient Anne explains in Michio Kushi's and Alex Jack's book, The Cancer Prevention Diet: "My mind rebelled at the thought of another six months of that poison. On several occasions, the doctor couldn't perform chemotherapy treatments on me because my white blood cell count was dangerously low. I promised my body I would not undergo any further chemotherapy treatments."

Anne's account reflects the feelings of all too many cancer patients who have suffered through months of often debilitating chemotherapy. The side effects that chemotherapy patients feel and others see – the extreme nausea and vomiting, the hair loss, the weight loss – are indicative of the intense havoc that chemotherapy is causing within the body. According to the Life Extension Foundation, chemotherapy drugs are "cytotoxic," meaning that "they kill cells that are extremely active." Cancer cells are, of course, extremely active. However, so are the cells of the hair and the immune system, for example, which accounts for chemotherapy's destructive side effects.

As if these side effects are not enough, cancer therapy commonly includes surgery and radiation, both of which have their own dangers and side effects. As Professor Null writes in his Complete Encyclopedia of Natural Healing, "The mainstream medical establishment often prescribes mastectomy, radiation and chemotherapy to treat cancer, an approach that has been described as a slash-and-burn strategy." The treatment for breast cancer is unfortunately often the general rule among cancer treatment – cut off the affected organ, poison the body with chemotherapy and then harm the body even more with radiation.

In Get Healthy Now, Professor Null describes one woman's experience with mainstream medicine's approach to breast cancertreatment: "Three days later, she had her breast lopped off. That was followed up with lots of chemotherapy. Her hair fell out and she vomited 24 hours a day. She couldn't keep any food down. Then they did radiation and her skin burnt up and two of her ribs broke." He concludes, "Most people don't know how dangerous radiation is. I had seen enough. I wouldn't touch any of that medicine with a 10-foot pole." Surgical removal of the cancerous body part also has its own aftereffects, of course, requiring not only the normal recovery after any surgery, but also coping with the psychological effects of having a body part removed.

It may all be unnecessary in the first place

As cancer patients suffer from the side effects of chemotherapy and other methods of mainstream cancer treatment, the fact remains that according to many medical practitioners, these treatments are unnecessary and sometimes do more harm than good. In response to chemotherapy's many side effects, Dr. Atkins says in Burton Goldberg's Alternative Medicine, "Only in situations in which chemotherapy is proven to be effective and curative would I recommend it. In general, this might be testicular cancer."

Many people also think that surgery can sometimes do more harm than good: Biopsy, for example, may in fact spread cancer cells, according to Professor Null. Furthermore, the most extreme example of unnecessary cancer therapy – treatment for false positive cancer diagnoses – is more common than we'd like to believe, according to Critical Condition authors Donald L. Barlett and James B. Steele.

If, as many people believe, mainstream cancer treatment is sometimes ineffective and always harmful to the body as a whole, then what is the alternative? Goldberg writes that Ukrain, which is made from the alkaloids of the greater celandine plant and the pharmaceutical Thiotepa, "can do everything chemotherapy does but without the side effects, so it renders chemotherapy largely unnecessary." The beauty of Ukrain is that it, unlike chemotherapy drugs, it only targets the cancer cells and not your healthy ones. Furthermore, good nutrition – vitamins, minerals, fiber, fresh fruit and vegetables, juices and medicinal herbs – can do wonders against cancer. Of course, you need to discuss a treatment plan that is right for your type of cancer and your body with a medical professional, preferably a naturopath. But before you say yes to chemotherapy, remember what it does to your body and consider all available treatments.

The experts speak on chemotherapy:

"Chemotherapy poisons your body as a whole in an attempt to kill cancer cells"

As Duesberg explains, AZT had been designed to work as would any other chemotherapeutic drug. "chemotherapy," he says, "is a rational but desperate treatment for cancer." The toxic drug given in the process will kill any and all growing cells in the patient. After a short round of chemo, "the hope is the cancer is going to be totally dead, and you are only half dead and recover." Duesberg points out that the dangerous violence of the method, which is slaughtering cells wholesale, not targeting only cancer cells, is evident in the side effects. "You lose your hair, you lose weight, you get pneumonia, you get immune deficiency, because it's severe cellular intoxication. You kill a lot of good cells, too." 
Aids A Second Opinion by Gary Null PhD with James Feast, page 429

"How chemotherapy harms your body"

In September 1986, Anne decided to stop chemotherapy despite the opposition of her oncologist. "My mind rebelled at the thought of another six months of that poison," she observes. "On several occasions the doctor couldn't perform chemotherapy treatments on me because my white blood cell count was dangerously low. I promised my body I would not undergo any further chemotherapy treatments." 
The Center Prevention Diet by Michio Kushi & Alex Jack, page 131

Other treatments, with significant side effects, are being investigated for more serious forms of the disease. Immunosuppressive drugs that have been used for cancer chemotherapy and organ transplants may reduce the autoimmune response. These drugs are cytotoxic; that is, they kill cells that are extremely active, which in autoimmune disease are white blood cells. 
Disease Prevention And Treatment by Life Extension Foundation, page 1373

Nausea is usually a passing symptom that will almost always go away by itself. In most cases, I recommend natural remedies for nausea because they are often as effective as some of the prescription antiemetic drugs, but they do not cause unnecessary side effects. The only exception to this rule, however, is in the case of cancer patients who are receiving chemotherapy; the kind of intense nausea they may experience can be so severe that stronger measures may be needed. 
Secret Remedies by Earl Mindell RPh PhD, page 204

"The tri-fold approach to mainstream cancer therapy"

The mainstream medical establishment often prescribes mastectomy, radiation, and chemotherapy to treat breast cancer, an approach that has been described as a slash-and-burn strategy. This approach may be in for a reappraisal with the recent insight by the medical world that breast cancer is actually three different diseases, with indistinct boundaries, rather than one. In other words, only some breast cancers fit the image of a disease that is fast-growing and fast-spreading. Two other categories of this condition exist, the slowest-growing of which may never spread or be life-threatening at all. With this realization comes the idea that giving everyone with breast cancer chemotherapy may be unnecessary. Considering the harmful effects of chemotherapy, the belated nature of this realization is disturbing, to say the least. 
Complete Encyclopedia Of Natural Healing by Gary Null PhD, page 72

Dr. Atkins regards chemotherapy as otherwise dangerous and best avoided in treating the majority of cancers. Only in situations in which chemotherapy is proven to be effective and curative would I recommend it, he says. In general, this might be testicular cancer … 
Alternative Medicine by Burton Goldberg, page 595

Three days later, she had her breast lopped off. That was followed up with lots of chemotherapy. Her hair fell out and she vomited 24 hours a day. She couldn't keep any food down. Then they did radiation and her skin burnt up and two of her ribs broke. Most people don't know how dangerous radiation is. I had seen enough. I wouldn't touch any of that medicine with a 10-foot pole. 
Get Healthy Now by Gary Null, page 762

I try never to use radiation treatment -- which is even more dangerous than most forms of chemotherapy -- without also using hyperthermia, says Dr. Atkins. Thanks to hyperthermia, we can shrink tumors with far less radiation to get the same therapeutic outcome, and our patients' immune systems and overall health are faring much better as a result. 
Alternative Medicine by Burton Goldberg, page 609

If prostate cancer develops, mainstream medicine typically offers prostatectomy, or removal of the prostate, chemotherapy, and radiation. All are ineffective and often dangerous. Surgery, like biopsy, can actual spread cancer cells, and often decreases sexual potency and urinary control. PACT, a prostate support group, advocates hormonal blockers to induce cancer shrinkage, which may hold the disease at bay for several years, followed by a prostatectomy or cryosurgery (freezing of the prostate). The most common hormonal blockers are Lupron and Fludamide. As prostate cancer is generally slow growing, patients, especially those in the early stages, have time to try less harmful methods of treatment. 
Complete Encyclopedia Of Natural Healing by Gary Null PhD, page 308

Rufer and her husband sued Abbott Laboratories, UWMC, and the cancer specialist who treated her. UWMC and the doctor argued that they had relied on the Abbott test results. Abbott denied all responsibility, even though the literature distributed with its tests made no mention of the potential for false positives. What's more, according to a court opinion, it turned out that Abbott also had access to reports that false positive results on its assay led to unnecessary cancer treatment before 1998. It received over forty complaints of false positives, including multiple complaints of unnecessary chemotherapy and surgery before Jennifer Rufer's first treatment in April 1998. 
Critical condition by Donald L Barlett and James B Steele, page 63

To reduce the need for steroids, immunosuppressants such as azathioprine, 6-mercaptopurine (also used in the treatment of some cancers), or cyclosporine may be substituted. Various chemotherapy agents and organ transplant antirejection drugs are also used. Again, these medications have their own problematic or dangerous side effects. Therefore, thoughtful consideration of a treatment plan coordinated by the patient's physician is required. 
Disease Prevention And Treatment by Life Extension Foundation, page 614

The diagnosis of bilateral lung cancer was confirmed by x-rays, a CAT scan, and a lung biopsy. Like Dr. Meshad, the physician at the center recommended against chemotherapy. Ruth's prognosis was not good: the cancer was aggressive and her history of liver disease made the use of chemotherapy dangerous. 
Sharks Still Don't Get Cancer By Dr I William Lane, page 155

"Alternatives to chemotherapy and other forms of mainstream cancer treatment"

In other words, alternative therapies may pose a serious threat when a patient, if swayed toward alternatives, loses the opportunity to receive the (extremely) effective orthodox treatment? Run that by me again. Time and time again it has been confirmed that the proven medical treatments are not only ineffective but dangerous. The vast majority of patients with cancer live longer and better if left without the orthodox treatments. Oncologists will not accept these treatments for themselves. No scientific research is needed to prove that fresh vegetables, fruit, juices, medicinal herbs, vitamins, minerals, fiber, etc. are not harmful to the body. It would be nice if there were proof that surgery, radiation, and chemotherapy were not harmful. 
Health In The 21st Century by Fransisco Contreras MD, page 224

Finally, if cancer specialists were to admit publicly that chemotherapy is of limited usefulness and is often dangerous, the public might demand a radical change in direction—possibly toward unorthodox and nontoxic methods, and toward cancer prevention. By constantly touting the promise of anticancer drugs, orthodox practitioners ward off this challenge to their expertise and scientists parry the threat radically new concepts represent to their long years of research. The use of chemotherapy is even advocated by those members of the establishment who realize how ineffective and dangerous it can be. 
The Cancer Industry by Ralph W Moss, page 84

Learn more:http://www.naturalnews.com/012727_chemotherapy_cancer_treatments.html#ixzz3JxQHnzxY

 

Childhood cancer treatments cause permanent damage to children's heart

(NaturalNews) Assuming that they even survive their treatments, children with cancer whose parents send them down the path of conventional chemotherapy and radiation could end up suffering a life of heart disease. These were the inferred findings of a new study recently presented at the American Heart Association's (AHA) Scientific Sessions 2013, which found that conventional cancer treatments severely damage children's hearts and make them more prone to developing early heart disease.

It has been known for some time that survivors of childhood cancer have a significantly increased risk of developing heart disease as adults. The National Cancer Institute (NCI) admits that, in the 30 years following cancer treatment, childhood cancer survivors are an astounding eight times more likely to die from cardiac-related illness and 15 times more likely to be diagnosed with congestive heart failure compared to the general population.

But now it has been shown for the first time that these risks increase in the short term as well. Children with cancer who receive chemotherapy and radiation are much more prone than their non-cancer counterparts to develop signs of heart disease early. Symptoms can include things like stiffening of the arteries, as well as an overall decline in arterial function.

"Research has shown childhood cancer survivors face heart and other health problems decades after treatment," says Dr. Donald Dengel, Ph.D., a professor of kinesiology at the University of Minnesota in Minneapolis and author of the new study. "But researchers had not, until now, looked at the heart health effects of childhood cancer treatment while survivors are still children."

Dr. Dengel and his team looked at 300 boys and girls between the ages of nine and 18 for his study. Each of the children had survived at least five years beyond the time of his or her diagnosis for either leukemia or cancerous tumors. Assessments were made of artery stiffness, thickness and function among all the children and compared to those made of more than 200 healthy siblings without cancer.

Upon analysis, the team found that the cancer survivors who underwent conventional treatments were significantly more likely to exhibit signs of early heart disease compared to their healthy siblings. According to the data, the treatment group experienced a roughly nine percent decrease in arterial health immediately after completing chemotherapy, compared to the non-cancer group.

"Given this increased risk, children who survive cancer should make lifestyle changes to lower their cardiovascular risk," adds Dengel, whose study has not yet been published in a peer-reviewed journal. "Health care providers who are managing chemotherapy-treated childhood cancer survivors need to monitor cardiovascular risk factors immediately following the completion of their patients' cancer therapy."

Official guidelines for heart health flawed; eat plenty of natural fats and avoid grains, sugar

Unfortunately for these childhood cancer survivors, the official recommended guidelines for lowering cardiovascular risk are inherently flawed. Federal dietary standards still erroneously recommend that people avoid saturated fats, for instance, and consume plenty of whole grains. And little mention is made of the serious dangers associated with consuming refined sugars and flours, another high-risk factor in heart disease.

"[Saturated fats] help to raise beneficial HDL cholesterol, improving your triglyceride/HDL [high density lipoprotein] ratio -- a key marker of cardiovascular health," writes integrative cardiologist Dr. Stephen Sinatra in his piece "Heart Myth Debunked: Saturated Fat Isn't the Enemy." "Saturated fats also help to change your LDL [low density lipoprotein] cholesterol pattern, from small dense particles that can clog your arteries to large 'fluffy' harmless LDL particles."

Sources for this article include:

http://health.usnews.com

http://natmonitor.com

http://www.cancer.gov

http://www.drsinatra.com 

Learn more:http://www.naturalnews.com/042988_childhood_cancer_treatments_permanent_heart_damage_chemotherapy.html#ixzz3JxDRdazo

Side effects of chemotherapy/radiotherapy on our children which doctors might not have explained

Hi all, this post is just to share with all of you about some of the many side effects of chemotherapy (chemo) and radiotherapy (RT) on our children. Banyak side effects kat sini yang doctor tak pernah explain to me or my hubby masa kitaorg buat chemo for Aisy... ni semua atas dasar usaha research sendiri dan bantuan daripada org2 yg tak dikenali yang share fakta2 ni.. sorry tapi mostly memang in English.. susah nak cari in bahasa..

Selalunya doctor or hospital selalu ceritakan side effects yang immediate, yang kita akan nampak semasa anak2 kita tengah buat chemo or RT.. macam rambut gugur, kulit jadi gelap, muntah2, ulcer, loya, darah merah turun, immune system turun dan mcm2 lagi.. itu yang selalunya akan jadi masa chemo or RT course dijalankan.. tapi ramai yang taktau atau tak diberitahu pasal long term effect pada anak kita.. saya cuma nak share sebab ilmu Allah ni luas dan saya rasa bertanggungjawab untuk berkongsi apa ilmu dan fakta yang saya dah come across.. ni semua saya copy from various websites.. you can do your own research.. ape yang saya kumpulkan ni is actually my own reference untuk aisy.. i try to highlight mana yang important to know if it is too long for u to read.. so please have a read to know more..demi anak kita..

1) Long-term outcomes

During and after cancer treatment, the main concerns for most families are the short- and long-term effects of the cancer and its treatment, and concerns about the cancer still being present or coming back.

It is certainly normal for families to want to put the cancer and its treatment behind them and to get back to a life that doesn’t revolve around the cancer. But it’s important to realise that close follow-up care is a central part of this process that offers children the best chance for recovery and long-term survival.

For many years after treatment, it is very important that children have regular follow-up exams with the cancer care team. As time goes by, the risk of the cancer coming back goes down, and doctor visits might be needed less often. But they are still important because SOME SIDE EFFECTS OF TREATMENT MIGHT NOT SHOW UP UNTIL YEARS LATER.

Because of major advances in treatment, more children treated for cancer are now surviving into adulthood. DOCTORS HAVE LEARNED THAT THE TREATMENT MAY AFFECT CHILDREN’S HEALTH LATER IN LIFE, so watching for health effects as they get older has become more of a concern in recent years.

Treating childhood cancer requires a much specialised approach, and so does the care and follow-up after treatment. The earlier any problems can be recognised, the more likely it is they can be treated effectively.

Childhood cancer survivors are at risk, to some degree, for several possible late effects of their cancer treatment. It’s important to discuss what these possible effects might be with your child’s medical team. The risks depend on a number of factors, such as the type of cancer, the specific cancer treatments used, doses of cancer treatment, and the child’s age at the time of treatment. Some of the MORE COMMON LATE EFFECTS OF CANCER TREATMENT INCLUDE:

- HEART OR LUNG PROBLEMS (due to certain chemotherapy drugs or radiation therapy)

- SLOWED OR DELAYED GROWTH AND DEVELOPMENT (in the bones or overall)

- CHANGES IN SEXUAL DEVELOPMENT AND ABILITY TO HAVE CHILDREN

- LEARNING PROBLEMS

- INCREASED RISK OF OTHER CANCERS LATER IN LIFE

2) What causes late effects?

Late effects are CAUSED BY THE DAMAGE THAT CANCER TREATMENT DOES TO HEALTHY CELLS IN THE BODY. Most late effects are CAUSED BY CHEMOTHERAPY OR RADIATION. Major surgery can also lead to late effects.

Cancer treatments like radiation therapy or chemotherapy kill cells that grow quickly, such as cancer cells. But in a child, many healthy cells in organs throughout the body are growing fast, too. Treatment can damage these cells and keep them from growing and developing the way they should. Sometimes the damage from treatment isn’t serious enough to cause problems that are noticed right away, but they may show up over time.

Survival by Children’s Oncology Group risk group

Low-risk group: Children in the low-risk group have a 5-year survival rate that is higher than 95%.

Intermediate-risk group: In children in the intermediate-risk group, the 5-year survival rate is around 90% to 95%.

High-risk group: The 5-year survival rate in children in the high-risk group is around 40% to 50%. (We were told Aisy was in this group)

The overall 5 year survival rate for childhood cancer is 80%.  That is awesome.  But SURVIVAL COMES WITH A COST.  OVER 2/3 OF THOSE SURVIVORS HAVE AT LEAST ONE SERIOUS CHRONIC HEALTH CONDITION.  1/4 of those survivors face a late-effect from treatment that is CLASSIFIED AS SEVERE OR LIFE-THREATENING.

 

3) Incidence Childhood Cancer (globally)

)

 

160,000 new cases/year < 15 years of age. 

90,000 deaths/year < 15 years of age

 

(Ferlay J, IARC Cancer Base N°5, 2004)

 

4)

Although chemotherapy can be very effective, the success rate varies and in certain cancers can be as low as one per cent!

"A survey of 128 US cancer doctors found that if they contracted cancer, more than 80 per cent would NOT have chemotherapy"  

A survey of 128 US cancer doctors found that if they contracted cancer, more than 80 per cent would not have chemotherapy as the "risks and side effects far outweighed the likely benefits". 

You have to work out what´s best for you and your type and grade of cancer.

4) A review of chemotherapy on 5-year survival rates in Australia garnered almost identical results, with a 2.3 PERCENT SUCCESS RATE, compared to the U.S. 2.1 PERCENT RATE OF SUCCESS. 2% only?

(NaturalNews) Chemotherapy is one of three main treatment protocols of conventional medicine, one which millions of people worldwide have been put through. In fact, virtually all of us know someone who suffered and finally passed on after a futile course of chemotherapy prescribed by his or her doctor. 'Nothing more could be done anyway', we are often told. Lately, a recent study in Britain has raised serious questions about chemotherapy, in particular the role it plays in hastening and even causing the death of late-stage cancer sufferers.

Details and Findings of Study

The study had been carried out by the National Confidential Enquiry into Patient Outcome and Deaths in Britain, whose members are mostly taken from British medical royal colleges. It had looked at the cases of 600 cancer sufferers in the country who had passed on within 30 days of treatment. The majority of the said patients had already been declared "incurable" by doctors, and had been put on chemotherapy for palliative purposes.

And the study found that ABOUT 1 IN EVERY 4 OF SUCH DEATHS HAD EITHER BEEN SPED UP OR EVEN CAUSEDBY CHEMOTHERAPY. The study's findings also included the discovery that 2 OUT OF EVERY 5 OF THE PATIENTS HAD SUFFERED SIGNIFICANT POISONING FROM THE TREATMENT.

Learn more:http://www.naturalnews.com/025499_cancer_chemotherapy_treatment.html#ixzz2xuR0sR4g

 

I’m sure some of the doctors who comes across this post of mine would flip.. but these facts are done with research on them.. there are some things they try to avoid telling patients because they do not want patients to worry more than they already have.. but we as parents of the patients, need to know the whole truth before we decide something or some kind of treatment for our children.. we deserve to know more.. it is our right to know from A-Z what the treatment can and will do to a person.. life is a precious thing and no one deserves to live more than another..

Last Chemo Cycle for the First Protocol

26th September 2013.. aisy admitted for 4th cycle.. tuh yg busy tuh, sbb bwk aisy untuk chemo.. huhu..so, doctor kata ni last cycle untuk first protocol dia.. after this, nak kena buat ct scan, nak tgk kalau cell2 tuh dah clear atau masih ade.. kalau ade lagi (naudzubillah)..kena la sambung dua cycle lagi tapi dengan chemo drugs yang lain daripada yg biase nie.. hmm.. risau jugak dgr..  tapi kalau cell cancer dah takde (amin).. Aisy Ezkandar cancer free!! (amin).. insyaallah.. doa doa doa doa doa doa....

So routine seperti biasa.. masuk line kat chemo port.. first day aisy okay lagi.. tapi badan panas sikit.. temperature tak kurang dari 37.0.. mesti 37.0 ke atas.. risaunya kalau dia demam.. takut kena infection ke ape.. plus kali ni dia lain sikit.. mungkin sebab dia dah nak umur setahun kan.. one more month to go.. so usually doctor kata side effects on children below one yrs old tak seberapa sgt compared dgn one year old ke atas.. so maybe bcoz lagi sebulan aisy will be one year old..kelakuan dia mmg lain.. dia jadi macam lagi aggressive.. i mmg jadi punching bag dial ah.. dia hantuk pale dia kat muka i..dia cakar i.. tampar i.. tarik rambut i.. which he usually doesn’t do lah.. so mmg this has been warned before.. patients going through chemo can sometimes act differently or badly.. mula2 mmg i upset lah tgk dia mcm ni.. tapi lama2 pasrah jelah.. nak marah pun takde guna.. budak lagi..

He also wakes up early in the morning and doesn’t sleep sampailah petang..bangun kul 530am.. petang baru nak tido..itu pun tido 30minutes jer.. hadoiii..i lah yg pening..huhuh..

And this time.. dua kali line putus.. tapi nasib baik line drip jer.. haihh.. also since i dah complain to doctor about aisy punya rashes after chemo.. doctor prescribe aisy an allergy medicine before start every chemo.. and Alhamdulillah.. after dah habis chemo.. allergy dia takde..and it helps him sleep.. so it is so much better for him to sleep through chemo sbb dia takkan gerak banyak, takut line putus masa chemo kan.. so sgt la lega..

So allergy takde...cuma dia kena gigit nyamuk on the last night, so reaction badan dia towards the gigitan tuh is not good.. so the benjot gigitan nyamuk tuh evolve to be something nastier.. slalu bila kena gigit nyamuk.. benjot n merah je kan... nih dia akan mula2 benjot n merah.. pastuh benjot jadi lagi besar.. and then the benjot akan macam ade air.. and now jadi small biji2 and merah... doctor pernah bagi cream fobian to put on these thingys..but since its quite near to his eyes.. i risau dia gosok2 and masuk mata pulak.. so i just put minyak biase jer..n hope it will clear away.. lupa plak nak amik gambar benda tuh..

Alhamdulillah after three days chemo selesai... sunday morning.. cabut line.. and pulang!! Doctor gave us the date 21st October 2013 for his ct scan and 20th November 2013 to discuss the results and what to do next.. so i guess i wont be having a lot more entries for the time being.. maybe i can update about aisy’s progress jelah..

Dear readers,

Please pray so that my boy no longer need any more chemo.. supaya dia cancer-free for life..dan membesar dengan sihat dan menjadi anak yg soleh.. amin..

Continuation of Treatment & New Allergies

Sorry dah lama dah tak hapdate.. busy with aisy of course..  so anyway, after the MIBG scan that we had to repeat for three days.. few days later.. hospital call and asked for aisy untuk sambung chemo..the third cycle.. so maksudnya masih ade lagi lah cancer cell dlm badan dia.. hmm takpelah.. nak buat camne..

So on 5 Sept 2013, we got aisy admitted to the oncology ward.. as usual.. 5 jam chemo sehari untuk tiga hari berturut2.. Doctor said he needs to do two cycles, then kena buat ct scan for evaluation of progress later on.. hmm ok.. 

Alhamdulillah aisy was doing great masa ni.. tapiiiii... since he is so active.. masa second day, line yg pasang kat chemo port dia tercabut keluar.. luka kulit dia kat area tuh.. haiyoo.. menangis lah dia... nasib baik tercabut masa masuk air jer utk hydration.. kalau masa chemo... i yg pengsan sbb mesti terbakar kulit aisy kena ubat chemo tuh.. eish naudzubillah... haiiihh anak..anak...

So doctor pun cucuk lah line baru.. so after four days in the hospital.. treatment okay..aisy pun okay.. so its time to go home.. masuklah bilik rawatan untuk cabut line dari chemo port dia.. bila cabut.. alamak.. dada dia besar sebelah.. doctor pun cuak.. haiyookk camne boleh jadi mcm ni? Doctor perasan jarum yg cucuk kat port tuh dah terkeluar sikit.. so apparently air drip tuh dah masuk ke tissue badan aisy instead of masuk ke line port tuh.. haihhh ni mesti sebab dia banyak move nie..

So the doctor kata tunggu sejam tengok whether surut ke tidak.. Alhamdulillah after an hour, mmg surut sikit lah.. then specialist pun dtg.. specialist ni plak risau lebih.. dia takut chemo port kat dlm badan dia disconnected yang membuatkan bocor and air masuk ke tissue.. ayyyookkk.. ade kemungkinan jugak tapi rasanya macam tak kot sebab dah nampak jarum line tuh terkeluar skit dah kan.. hmm but still specialist tuh insist aisy buat xray utk check the chemo port..still intact ke tidak.. baiklahhh doctorrr.. nampaknya minggu depan kena la dtg balik utk Xray pulak.. so for the mean time doctor bagi balik rumah.. tapi dia pesan kalau tetiba tempat port dia tuh merah ke.. or dia demam ke.. kena terus bawak balik ke ward ni.. “baik Doc!!”

So we went home on sunday, 8th sept 2013.. Xray appointment was given for 12th sept 2013.. pendek kata, we went for the Xray and Alhamdulillah all is well.. benda tuh still in good condition.. so betulah it is because jarum tuh dah nak terkeluar.. thats why bengkak sekejap..tissue masuk air..

Oh before that, a day lepas aisy discharge, naik rashes satu badan.. This is something new because usually bila lepas chemo sebelum ni, dia cuma naik bintik2 skit2 jer kat tangan camtuh.. Tapi ni rashes satu badan.. Menggaru jelah dia.. Besar kemungkinan this is bcoz of the blood transfusion yg dia buat masa operation hari tuh.. 3/4 darah dia diganti dgn darah org lain.. So his allergy jadi lagi teruk.. Means darah dia dulu lagi better dari darah org ni.. Hmm well what to do.. Consequences yg unavoidable.. But a day after that, rashes dia pun subside..it didnt last long la alhamdulillah.. I didnt put anything on the rashes, biar benda tuh baik sendiri.. N it did.. Kena la notify doctor during next chemo session..

Next chemo.. is scheduled three weeks after.. which is 26th Sept 2013.. see u in that entry!

MIBG Scan

Ape tuh MIBG scan?? Mula2 i pun taktau..but of course.. google la kan..

MIBG stands for meta-iodobenzylguanidine. Neuroblastoma cells take up (absorb) this protein, and when it is linked to a small amount of radioactive iodine, it can be used to find neuroblastoma in the bone, bone marrow, and other parts of the body. Because the child’s thyroid gland will also absorb radioactive iodine, regular iodine is taken by mouth for several days before the scan to protect the thyroid.

Apa itu I-131 MIBG?

Metaiodobenzylguanidine (MIBG) adalah suatu zat yang dapat berakumulasi di tumor neuroblastoma. Apabila MIBG ditempelkan dengan ubat radioaktif (I-131) maka akan dapat memberikan efek terapi dari energi radiasi beta yang dimiliki oleh I-131. I-131 MIBG ini berbentuk cairan jernih seperti air.

Say what?? Heheheh.. doctor suruh aisy buat mibg scan which is usually used to scan Neuroblastoma.. so on 26 August 2013, kitaorg bawak aisy ke HKL balik.. biaselah..masuk URH.. cucuk line, then drove to the radioterapi building.. kat sana.. diaorg inject isotope which is the radioactive substance yang akan masuk throughout his body for one week.. and during this time aisy tak boleh dekat dengan any children or pregnant ladies... quarantine lah seminggu...oh yeah, tiga hari sebelum kena injection ni, aisy diwajibkan minum lugol iodine untuk protect thyroid dia or something like that.. tiga hari sekali tiap2 hari kena minum..tak boleh miss tau.. then after dah cucuk the isotope on that day.. kita pun balik.. three days berturut2 lepas kena injection kena sambung minum lugol iodine tuh which kitaorg campur dalam susu aisy.. because tak sanggup bagi dia orally guna syringe sebab the smell and taste is so bad.. even pharmacist pun suruh letak dalam susu dia...

The hospital asked us to return to do the scan on wednesday..coz the radioactive substance tuh kena serap betul2 dalam badan dia...so we went on wednesday, he was sedated with chloral hydrate sebelum nak buat scan.. so bila dia dah knocked out..doctor pun buat la scan.. tiba2... another 20minutes left.. aisy dah bangun.. pusing and merangkak atas machine tuh.. astaghfirullah.. macam mane ni.. hmm looks like we have to come back tomorrow lah to do another scan..

Next day we came back.. this time ade doctor and nurse from URH ikut kitaorg ke tempat scan tuh.. coz doctor tuh nak sedate him with something stronger called mida.. sama macam masa MRI dia harituh..so Alhamdulillah he was knocked out throughout the whole scanning procedure.. after 1 hour plus.. dah abis scan.. the doctor in charge of the scanning suruh dtg lagi the next day... hadoiiii..whyyyy?? coz she said ade some parts nak tengok progress bla bla bla.. haiyaakk bohsannyer dgr sebab kesian aisy kena bangun kul 6am everyday.. takpelah.. esok last..gagahkan jua lah..

Next day..which is a friday..last day of the scanning.. as usual..sedated with mida.. after one hour plus.. settle!! Yeayyy... boleh balik..results?? as usual..tunggu diaorg call lah..then only we would know whether to continue chemo ke tidak..

 

Aisy’s 2nd cycle of chemo & chemoport re-insertion

17 July 2013..it was a wednesday.. masa tuh dah start bulan Ramadhan.. so kena la puasa kat hospital.. we got ourselves to IP in the afternoon.. registered and checked in to the onco ward as usual.. so pasang line..amik darah.. then the whole day takde procedure except for the anaesthesiologist datang and asked us to sign the release forms etc.. so aisy is set for tomorrow morning at 9am for chemoport re-insertion..harituh chemoport dia on the right.. tomorrow they will insert belah kiri pulak.. near his heart.. insyaallah hopefully everything will be fine..

So keesokan harinya, as usual, aisy kena puasa.. and we brought him to the dewan bedah.. about 3 hours later.. all is done.. Alhamdulillah all went well.. he was brought to the ward for recovery.. dah sedar.. dah boleh minum susu.. dah boleh main2.. they will start his chemo at 6pm on that day itself.. haihh risau sangat kalau dia demam ke ape .. tapi kali ni confident sikit sebab line yang diaorg pasang kat chemoport tuh diaorg buat dalam operation theatre (OT).. so OT memang bersih n sterile kan.. so i rasa confident skit lah.. cuma taktau aisy punya reaction towards chemo kali ni macam mane pulak.. chemo ni..mmg u xleh expect what’s gonna happen.. we just try our best to overcome jer.. maybe boleh prevent jugak kalau dah buat research..

So 1st day chemo..alhamdulillah okay.. 2nd day chemo badan panas skit tapi bila tuam2 skit.. dia okay.. 3rd day pun Alhamdulillah syukur sgt2 dia active and ceria!! Hubby n i sangat2 happy sebab Aisy sihat and takyah prolong stay kat hospital sebab tak larat nak berpuasa kat hospital..sayu pun ade gak..sahur nasi bungkus ade penderma yg bagi tiap2 hari.. berbuka dgn makanan hospital share dua orang dgn hubby huhu.. By the way, on the day before we got discharged, ade visitors dtg bearing gifts and balloons.. aisy was so excited with the balloons.. heheh seronok tgk dia engross main dgn balloons tuh.. hehehe... so hari ahad we got discharged!! Yiippeee..!! but before balik.. we were given a date for Aisy to do his ct scan on 29 July 2013.. hmm.. this scan will be the evaluation of his progress of reaction towards the chemo.. hmm sangat debar.. memang doa supaya benda tuh hilang dengan miracle nyer.. huhu.. cuak cuak cuak...

The Detection

So you see.. the detection was by chance.. we were lucky enough to have followed our instincts.. kalau nak tunggu symptoms, memang takde lah sebab aisy tak tunjuk ape2 symptoms.. yang demam tuh biaselah baby demam, nak membesar kan? .. so we were blessed with the early detection.. or so we thought..

Monday morning, 10th June 2013, dah tercangak depan Institut Pediatrik, HKL.. we were referred to the surgical ward.. for those yg dah biasa dgn IP ni..mesti dah tau ward mane kan.. so pergi la register n whatnot.. ingatkan jumpa doctor jer..rupanya kena admitted terus..hmm ok, xpe.. nasib baik barang2 semua dah siap dlm kete.. so we were given a room at the back sebab kat depan semua dah penuh.. it is an open ward with no air conditioning, only ceiling fans.. but they provided extra standing fans for each bed, so it was not so bad.. so as we walked through the ward, memang sgt sedih sebab seeing small babies with all the wires around their bodies.. balut sana balut sini.. maklumlah, surgical ward kan.. so semua yg ade kt situ mmg akan atau sudah pun melalui surgery.. so we thought..oh, aisy will be going through surgery lah kot anytime soon..to get rid of the tumour..

Ok, dah sampai the room where we were given, hmm.. bilik berdua, aircond ade, memang comfy.. Alhamdulillah..rezeki untuk beginners hehehe.. yelah, for me, i mmg tak biase staying at govt hospital.. this is actually my first time.. itu pun not for me, but for my son.. hmm okay.. my hubby expert dah bab2 hosp govt nie.. so dia explain la kat i and taught me how to prepare myself with the service and procedure n whatnot... ok ok.. i boleh handle.. so i pun tekan la button kat dinding tuh, konon2 nak panggil missy.. rupa2nya benda tuh tak berzaman tak berfungsi.. kena panggil missy secara manual yer.. tapi kitaorg bilik paling hujung skali.. jauh dari counter missy.. hmm.. takpelah, tunggu jelah bila2 missy datang..

So we waited for the surgeon to come and check on us, also to review the ct scan films that we brought with us from Pjaya hosp. Lama jugak la nak tunggu, i think afternoon kot baru surgeon dtg.. then he came.. i saw his tag.. he was the head of surgeon..hes a Datuk..hmm ok.. nervous skejap.. then he reviewed the films and asked us about the findings in Pjaya hosp.. so i told him lah what the docs told us.. i also asked if it is possible for the mass to be just his tahi keras je?? He said a simple “no”..then he said.. “They could have done a better job with the scan.. hmm.. in my experience, i’m guessing it is neuroblastoma (cancer saraf)and not Wilm’s tumour but we will do a biopsy to actually know what it is..”..”but before that, we will do an ultrasound just to be sure of the size and location.” In my heart, i was actually hoping for it to be Wilm’s tumour because after Pjaya said it could be either or, i did my searching on the net and i think Wilm’s tumour is less complicated. But when he said it looks like neuroblastoma.. my heart shrank a lil bit.. 

Next day.. we did an ultrasound... it was quite long because the sonographers macam tak percaya jer bila tengok ultrasound tumour dia.. coz the tumour is like all over the place.. from one end to the other.. guess what? I was still hoping that it’s just his stool yang keras yg dia tak berry hahahah.. denial..i know.. but any mothers would have still hoped for the same..so i tanya the sonographer.. u rasa boleh jadi tak benda ni tahi keras dia je? Hahahahah he chuckled and said.. most likely tak.. ok fine.. i kena terima la kan..

After ultrasound sume dah selesai.. petang tuh, a doctor came and told us that they will be doing a biopsy and chemoport insertion for aisy the next day.. biopsy tuh oklah.. but chemoport insertion??? What on earth is that.. i know it’s got something to do with chemo tapi ape benda tuh? Then she explained that it is a port where they will tanam under patient punya skin.. so that bila buat chemotherapy, cucuk line kat situ sebab chemo takleh guna peripheral line (line kat tangan or kaki).. ohhhh i see.. but why nak letak cepat sangat? Kita tak tau pun aisy perlukan chemo ke tidak.. abihtuh, kalau dah buat biopsy nanti, tetiba aisy takyah buat chemo.. nak buang balik ke benda tuh? Bukannya benda kecik sebab it needs surgery to do it kan.. so i still tak puas hati kenape nak kena letak chemoport tuh cepat sangat.. nape taknak tunggu results dulu? Then doctor said.. because Datuk thinks its neuroblastoma.. so most probably it needs chemo.. i macam.. hebat sangat ke Datuk ni sampai boleh diagnose tanpa biopsy? Hmm.. tapi doctor tuh mmg mcm convinced la dgn sangkaan Datuk..ok.. so hubby n i pun terpaksa terima la dgn hati yg open..petang skit, anaesthesiologist pun datang.. dia explain pasal allergy terhadap general anaesthetic (GA) n all that.. sign release form etc..

So Wednesday is here.. sudah tiba masa untuk biopsy and chemoport insertion procedure.. i risau more on the GA reaction sebab it’s the first time for Aisy kan.. macam2 boleh jadi kalau ade bad allergic towards GA tau.. so mmg teramat risau..then about 9am.. we were called to the dewan bedah.. nervous.. cuak.. debor.. gigil.. first time kottt... so bila dah sampai, Medical Officer (MO) tuh tanya sape yg nak masuk.. so hubby and i looked at each other and we decided i yang masuk.. so pakai all the necessary things.. and bawak my baby masuk ke Operation Theatre (OT).. i kissed him nonstop while walking ke OT.. Then MO and anaes suruh i letak aisy on the warm thingy atas meja operation tuh.. so i did.. then they inserted the GA through his line kat tangan, then mata aisy terus naik ke atas.. Ya Allah.. detik yang sangat menakutkan dan merisaukan aku.. pastuh MO suruh i kiss him and leave the OT.. so i kissed him and told him that ibu and ayah will be waiting for him outside.. as i left.. i couldn’t hold my tears.. memang hancur hati bila keluar dari tempat tuh.. i masih lagi boleh rasa kepiluan yang genggam hati i at that moment.. i ran straight to hubby and he hugged me, cuba tenangkan hati i.. i nangis dalam nak dekat sejam kot.. pastuh bila dah reda.. try to doa dlm diam.. sambil sembang2 kosong with hubby just to get our minds off the anxiousness.

It is now 11.30am.. hmm lamanya.. .......12.30pm........ susah ke nak letak chemoport tuh?.........1.30pm... aihh, biar betul.. lamanya... 2.00pm.... “Aisy Ezkandar!”... nurse panggil from the Dewan Bedah.. berlari lintang pukang ibu n ayah ni heheheh.. then i pakai balik benda2 tuh sume and went in.. alahai..sedihnya tengok my baby boy tergelepek kat atas katil kat tempat recovery tuh.. merengek2 sebab lapar.. yelah.. puasa since 3am.. skang dah 2pm.. baby.. mestilah nangis.. so i held him..takut2 sangat sebab takut terpegang tempat yg diaorg buat surgery tuh.. i held him.. calm him down.. kissed him puas2.. Alhamdulillah.. anak ibu okay.. after about 15mins holding him, i switched places with my hubby.. to let him have the chance to see his son.. i know he doesn’t show that he is worried tahap gaban but deep inside.. i tau dia risau.. so i waited outside.. then about another 15mins after that, Aisy was brought back to the ward.. doctor said bagi air je dulu.. bagi sikit.. to see if he muntah or not.. i just terus gave him milk about 3oz.. then tengok dia okay jer.. i gave him another 3oz.. syukur sangat takde ape allergy or side effects after the minor surgery..the day ended well with our family visiting Aisy.. he was happy..

Thursday.. Datuk came.. and told us we could go home!!.. yiippeee.. bestnyer.. he will inform us of the results next week.. and tengoklah macam mane nanti.. ok.. so ape lagi.. packing2 ..vrroooommmm...pulanggg...