The Putrajaya Hospital Experience

4th of June 2013, we reached Pjaya Hosp in the morning, sangat serabut, sampai2 je, tetiba rasa satu macam.. hmmm.. uh oh.. mcm lampu merah jer.. larilah pergi beli “roti” dekat hospimart, then lari ke toilet kasi pasang huhuh.. mmg betul la lampu merah.. ok fine.. dah berpeluh2 dah nih..

TIBA-TIBA...Aisy buat business besar la pulakkk.. cari baby room, takde??!! Seriously?? And i saw a sign saying this hosp is baby friendly hosp.. i was like.. (giving a sarcastic face).. okay fine, masuk toilet.. takde tempat pun untuk i baringkan anak i.. hmm camne nak tukar lampin ni.. orang dah makin ramai ni.. nak register lagi..nak dapatkan nombor yg terawal nih.. stress stress...pusing2 nampak opposite clinic paed tuh ade bilik menyusu.. hmm.. walaupun ade notice kata takleh cuci berry anak kat situ..lantak lah..abih tuh, takkan nak tukar kat counter nurse kan? Hangin kejap.. ok, masuk nursing room tuh, nasib baik ade sink.. okay tempat nak letak aisy limit skit tapi boleh la make do.. okay letak aisy atas table tepi sink tuh.. dia plak meronta2.. bukak lampin, basuh berry dia kat sink, jerit2 dia sebab air sejuk.. nak buat macam mane kan.. terpaksa la.. then dah cuci, nak lap, pakai lampin semua, aisy tak mau duk diam, last2 terhantuk kat dispenser tissue kat dinding tepi tuh, lagi la melalak dia.. hadoii.. peluh menitik2 nih.. tetiba tgk baju pun sudah kena berry la pulak.. amik plak baju, kasi tukar, mmg wrestling habis dgn aisy yg tgh mengamok.. dah siap semua.. terus angkat aisy, bukak pintu, pass dia kat ayah dia.. huh!!!!! Letihhhh... ok the hard part is done.. now nak gi counter amik number.. tetiba hubby kata.. takpe yang.. i dah amik number and register, u cuma bagi info kat counter register tuh jer.. wahhhh.. sangat lega rasanya.. rasa cam nak cium cium hubby kat situ.. sebab sgt meringankan beban dan menghapuskan serabutness yg ada..

Ok so dah settle kat counter, tunggu la kat waiting area paed clinic tuh.. i think 1 hour plus kot? I don’t really remember, but its around that la.. Aisy memang pengsan dah sbb tunggu lama..pastu diaorg panggil amik darah sume, timbang.. then jumpa doc.. doc pun check2, and she asked a lot of questions of course.. and so did we.. hehehe

After checking and all that, doc said memang ade something kat situ, so she called the specialist asking whether or not we should be admitted. After describing her findings to the specialist, he asked us to be admitted on that day itself for further investigation. Oklah. So we went ahead n registered for ward admission.

So dekat ward yang first class tuh, it was quite comfortable cuma i don’t understand why diaorg tak provide bed for parent yang overnight. Instead they gave a reclining chair.. memang patah pinggang lerr.. we stayed till friday kot... me and hubby took turns.. the first night.. i cried.. just looking at my son, kena cucuk peripheral line kat tangan and whatnot.. talking about cucuk line.. hangin balik rasanya bila teringat this one doctor kat situ.. HMO je kot.. Ya ampun.. boleh tak dia datang ke katil we all, pukul 1am, saying nak pasang peripheral line kat aisy, i cakap.. “alaa..dia baru jer tido, boleh tak buat kejap lagi sebab nak masukkan drip pun kul 4am..”.. dia kata, “takleh, kul 4am jap gi banyak lagi patient nak admitted..”.. boleh?????????? Dia ingat aku nih bangang ke hape?? Mane ade orang admitted kul 4am unless emergency cases kottt.. pastuh yg lagi siut (im being nice) nye lagi.. i tak sempat nak bangun and kejutkan anak i elok2.. tetiba dia angkat anak i macam tuh jer!! So my son woke up terkejut and looking at his masked face.. then bwk masuk bilik rawatan and restrained him and nak cucuk line.. of course la anak i terkejut, tetiba bangun kena cucuk bagai kan.. eeeee geramnyerr bila teringat.. tambah2 lagi, i taktau brape kali dia cucuk.. tak jumpa vein!! Anak i dah melalak tahap gaban dah.. sampai tarik tau tak.. i went in the room and told him to stop and continue later on, i need to calm my son down.. nurse plak halau i kuar, boleh??? Then i went to the counter, nampak doctor yg betul2 doctor and told her of the situation. So she went in then skejap jer dah settle semuanya.. i carried my son and dia dah stop nangis..but still tarik.. hancur hati tgk dia mcm tuh.. then i tried calming him down at the tv room.. but dia still on off nangis and still tarik.. after that, i went to the nurse yg halau i tadi coz i couldn’t find the inconsiderate b******.. i asked her his name..and told her to tell him “Don’t ever come near my son again!”.. that was the last time he handled my son’s case.. My son tarik smp kul 4am tau.. eventho he has fallen asleep.. so parents out there, it’s okay to say no or to question their treatment towards our son.. doctors are not always right.. we can always refuse.. but be smart and choose ur battle wisely.. btw, my son until now, is still traumatised when it comes to setting up the line, he just needs to enter the bilik rawatan, dia dah melalak dah.. thanks Dr HMO!! Thanks a lot!!! fuhh lega rasanya dapat luahkan perasaan..

Ok anyway, kat sana, they did few scans.. ultrasound, xray and ct scan.. baru i tau yg anak i memang tak affected dengan ubat..hahahaha coz they had to give him morphine to knock him down masa nak buat ct scan.. wahaha.. hebat sgt.. anyway, i think it was wednesday night kot.. the doctor came and told us about their findings.. masa tuh.. dunia ni rasa gelap jer.. it felt like everything has come to an end..

Doctor said, “We found a tumour near his kidney... it is about 9cmx6cm in size.. we’re not sure what it is specifically.. it could be Nephroblastoma a.k.a Wilm’s tumour or Neuroblastoma..”

........................................................ Silence.... both my hubby and I were silent for a moment.. then we asked him a few questions then the doctor left.. both our heads couldn’t register what the doctor just said.. so i just kissed my son, hugged my hubby and left..coz it was hubby’s turn to stay the night.. yes i know some of u might judge me and say, “how could I leave my son and go home?? Ape punya ibu la macam ni and whatnot..” lantak la korang nak kata ape.. for me, its all about practicality.. if my hubby and i take turns staying overnight, then at least both of us have enough rest in order to take good care of our son.. ada paham tak?? In the day, both of us will take care of him, then bila malam, kitaorg tukar2 la tido kat sana.. sebab nak jaga orang sakit, minda kena cergas, hati kena tenang, tidur mesti kena cukup.. so if we have the chance to do so, why not? Kalau mmg dah takde pilihan macam single mothers or fathers tuh, memang takleh buat ape2 la kan.. so i think u guys get the picture.. nak terima ke tak.. tak kisah la..

Anyway... when i left the hospital.. while walking to the car.. air mata menitik bagai nak rak tanpa sedar.. tetiba jer nangis teresak-esak..masuk kete.. tenangkan hati.. sebab takut nak drive dlm keadaan macam tuh kan.. kang teraccident satu hal la plak kan... so dengan hati yg serba relax serba tidak tuh, i pun drive home.. masa nak sampai rumah.. tetiba kawan office call.. tanya i.. macam mane? Ade ape2 results tak? ....................... terus berderai ayaq mata cheq.. nak cakap tapi tak keluar ape..kawan i mesti terkejut kot time tuh.. tetiba dengar i meraung kat telephone.. meraung sampai la depan umah.. park kete.. pastu try control nangis.. kawan i sabar n tunggu jer on the line.. then bila dah boleh ckp.. i told her what the doctor said.. rasa macam nak terjun bangunan dah masa tuh.. (pls excuse my expression yea.. im not suicidal, just expressing the details of my heart).. then she asked me to calm down and update the office of any news..

Masuk umah, cite kat Mama.. oh by the way, we stay at my mom’s place since my mom is a single mother.. kesian nak tinggal dia sesorang.. so bila dah cite kat Mama, meleleh lagi la air mata.. pastuh naik atas.. nangis sampai tertido sambil peluk baju anak.. 

Then when Friday arrived.. doctors still nak hold kitaorg sebab nak buat investigation lagi tapi hubby dah fed up dah sebab hosp buat anak dia macam experiment exhibit kann.. doctor nak observe air kencing lah ape lah.. but i refused sebab i tak nak diaorg buat macam2 but diaorg sebenarnya taktau sangat pun.. plus bila pakai catheter kat saluran kencing tuh, possibility of bacterial infection is quite high and im not willing to risk it la kan.. sebab one thing i memang very particular when it comes to my son’s exposure to the dirty world nowadays.. bukan dirty ape, maksudnya mcm2 penyakit, udara tak bersih.. n all that la.. so i don’t bring my son to places mcm pasar malam.. supermarket.. or tempat2 yg ramai orang, tempat ramai orang akan batuk and bersin kat muka kita la senang kata.. biarlah orang nak kata ape kan.. lain org, lain la cara jaga anak.. oops dah terdivert pulak.. ok sambung.. so last2 the head of paed datang jumpa kitaorg uallsss.. dia kata dia follow case aisy this past few days.. tapi dia kata.. dia kena refer kitaorg kat HKL sebab nak buat MRI semua.. and Pjaya don’t have those kind of facilities.. so kami direfer untuk pergi hari pada hari isnin pagi.. and so, our chapter at Pjaya Hosp ends..

When the Signs Begin to Show

To continue my story.. so from he was 6 months old onwards.. first time dia demam panas on 9 May 2013, with temperature 38.5 degrees.. memang for u guys out there temperature cam ni takdelah tinggi sangat.. but as for me, it was high because he has never gotten fever before.. then bila demam cam ni, terus naik quite high.. he had fever for 2 days.. thursday n friday.. then the week after that.. he had another fever on friday but only for one day..of course la bila baby demam.. its considered benda biase je kan.. nak tumbuh gigi lah ape lah.. tukar bulan and all that kan.. so then the next week.. on friday..demam lagi.. being a Malay, i mula la fikir pasal benda2 ghaib ni.. but in the end, i ignored it la.. maybe it was just a coincidence. But at that time we were in Penang visiting my dad.. bagi dia spend time with his cucu pertama.. so i thought aisy demam sebab new environment and what not.. but his demam memang only for one day aje..

So then after that balik from Penang.. macam biase..continue working n all that.. oh yea, i actually have been emailing the head of paediatrician of Putrajaya Hospital asking about the lump on the chest and she was very prompt and helpful in her reply. So i was less worried but still quite worried. then after few days.. my maternal paranoia kicked in.. tetiba i rasa macam nodule @ lump kat left chest dia tuh macam besar skit.. tak banyak..maybe 1mm je kot..hehehe.. but hubby said im just imagining things hahah.. maybe i am la..sebab how can i detect a 1mm growth kan?? Tak logic la pulak hihi.. but i still tak puas hati and my heart tells me that i should do something about it.. also, i wanted to see his weight gain punya progress sebab when he was 5 months, he weighed 7.9kg.. during 6 months, he weighed 8.1kg.. not much difference.. so i was curious to see what his weight would be when he reaches 7 months. Few days after that, hubby tanya.. so confirm ke nak jumpa paed monday ni? Monday was 3rd June 2013 which is Aisy’s 7 month birthday.. i kept quiet for awhile.. listened to my heart.. then i said.. yes.. confirm kita gi jumpa.. so oklah monday amik cuti and we continued our way to Klang.. i think it was like 11am.. tunggu kat waiting area.. while aisy gaze his way around.. and feeling excited.. coz he loves jalan2 and seeing new things. I think all babies r like that la kot? Huhu.. then suddenly it was our turn to go in.. so paed tanya.. what seems to be the matter? Since he is not there for his vaccination.. (FYI for those yg taktau, 6 months is the last vaccination before the 12 months vaccination). Anyway, i told the doctor about my concern regarding the minor growth of his nodule tuh. When the paed took a look at it.. he said.. are u sure it has grown? It seems like the same size as it was a month ago.. huhuhu so i said, im just being paranoid la kot.. then the doctor decided to weigh aisy.. guess what.. ? his weight was still 8.1kg.. that was when the paed’s face changed.. he looked a little worried.. then he put aisy on the examination bed and started to examine aisy’s body.. tekan sana..tekan sini.. then..suddenly he asked me soalan cepu mas..Has aisy been having fever lately?? .. terus DUP!!!! Jantung i terus jatuh.. and i informed that doctor about dia demam tiap2 minggu tuh.. then when the doc was pressing near his stomach n liver.. he showed a more concerned face.. i dah memang tak tentu arah dah kot rasanya.. tgk hubby jap..hubby pun muka macam xtau nak expect ape.. then tgk muka doctor..lagi la rasa nak pengsan.. aisy relax je sambil main toy kat situ..then after a long silence.. the paed said.. please bring your son to the hospital today.. there seem to be something wrong with his liver n spleen (hati dan limpa).. dia rasa macam liver n spleen tuh bengkak.. then he said.. this might be caused by an infection.. OR...... it could also be CANCER.. i felt my face burning.. couldn’t feel my knees.. telinga rasa berdesingggg jer.. tapi tahan..sebab nak kena dengar doctor explain and instruct ape nak buat.. so he said.. “I’m gonna write u a reference letter for u to refer to the hospital”. So we said, okay, refer us to Putrajaya Hospital because we were thinking sana facilities baru plus tak ramai sangat orang compared to PPUM or any other govt hospital, also because i have been corresponding with the head of paed kat sana kan, maybe she can help. moreover, Putrajaya is quite near to our place which is in Subang.

Before we left the doctor’s room.. he said..”Please.. you have to go today.. do not delay and get your son admitted to the hospital”. I left the room with tears started falling.. next thing I know i was crying my eyes out, not knowing ape nasib anak i..hubby tried to calm me down.. saying that kita taktau ape lagi.. maybe doctor silap ke.. or maybe its just a minor infection ke.. we shouldn’t be overwhelmed with uncertainties katanyer.. okay.. so i tried calming myself down.. eventhough nangis sekejap, muka dah bengkak habis.. parents lain kat situ semua pandang jerr.. im sure they were wondering ape hal sebenarnya.. mesti hati diaorg meronta2 nak tau.. tapi takleh nak tanya la kan, kang nampak cam kaypochi jer eheh.. so okaylah, i went to the toilet, washed my face.. istighfar.. tenangkan diri.. then i joined my hubby n my son at the payment counter.. usually the bill would be RM30 for consultation fees, its a private clinic but not the expensive kind.. but the specialty there is it’s a maternity centre. That was the same place i gave birth to Aisy.. that was the reason why we brought him there for his monthly check ups and vaccination.

While waiting for the nurse to call us to make our payments, I went outside to call my mom and mom-in-law and inform them about the situation and that we are going to Putrajaya hospital. They were both of course very concern. Then i went back in, we just sat there while i plant my kisses on my baby.. memikirkan nasib dia.. i peluk dia kuat2.. kiss dia sampai dia rimas.. J pastu nurse panggil..bayar bill.. then hubby gi amik kete.. and we left the place.. we went back home to pack few things.. just incase Aisy will be admitted on that day itself. Packing la baju2 dia.. our clothes as well.. then about 3pm we left.. i called my dad on the way there n told him as well, he was quite upset but told me to keep calm and trust in Allah.. and so i did.. of course..

Around 3.45pm, we reached Putrajaya Hospital, at the emergency entrance then we were told to go to the paediatrician specialist clinic inside, then sampai sana.. they said system down, come back tomorrow untuk amik darah because they can’t register us on that day.., then thursday baru boleh jumpa specialist.. lambat kot?? dengan rasa risau, kelam kabut, hangin! We left and set an appointment for the next day untuk amik darah semata2.. ok fine, takpelah, nak buat macam mane.. pasrah jelah.. balik tuh, i terus email the head of paed of Pjaya Hosp and told her what had happened, then dengan baik hatinya, she arranged for us to come back tomorrow for blood investigation and to see the specialist terus. Tak payah nak tunggu hari khamis bagai.. wahh rasa macam org penting kejap, ade contact besar kan hahahahah padahal i don’t even know the doctor and she doesn’t know me as well. She was just very kind and helpful by nature. Anyway, lega rasanyaaa.. sebab kita taknak lah tangguh2 since paed dekat klang tu suruh cepat2 kan?? Cuak la jugak..

So our trip to Pjaya Hosp the next day i sambung jap gi ek..