Second MIBG scan

Salaam n hi all.. Im writing this while waiting for Aisy tgh buat MIBG scan.. If some of u r not sure what MIBG scan is.. U can read my post from last year. I dah pernah tulis coz this is aisy's second time buat this scan.. 

Two days ago we came here untuk aisy kena cucuk radioactive into his body system.. So as usual, not allowed to be near other kids, preggers and avoid contact with his poopoo n peepee heheh

Then kena tunggu dua hari, and today he has started the 1st day of scanning.. Kesian budak tuh kena bangun awal pagi.. Muka groggy but still in a good mood hehe

Usually this scan will take up 3-4days.. So most probably, aisy have to repeat d scan tomorrow n friday as well.. 

So hopefully when we get the results, it would be positive lah huhu.. But if its not, its okay. We will fight harder insyaallah.. Lots of prayers from u guys would really help a lot :) merci.. 

Regular Oncology Appointment

Yesterday (13 February 2014) was Aisy’s appointment with the Oncologist.. As usual.. We did everything we usually do as i wrote in my previous post..

Sampai sana around 9am plus.. then do all the necessary things.. Alhamdulillah.. ultrasound results clear.. blood counts pun okay.. flushing pun okay.. yeay..

the doctor asked me if I have decided whether or not we wanna proceed with surgery.. I told her that i’m still waiting for Allah to answer my prayers to give my hubby and I guidance (although it seems that He has, but being human, nak kena confirm btul2) hehe but.. sape lagi yg boleh tolong? no one except for Him...

So I asked her a few questions about their plan for Aisy.. her explanation wasn’t really clear but I don’t blame her coz we as parents pun didn’t give her our consent to proceed with anything.. so the only thing thats coming up is the MIBG which could be in late March or April.. she also gave me the list of drugs that is in plan for Aisy’s chemo (if we want lah).. three different and stronger drugs than before...

Cyclophosphemide

Vincristine

Doxorubicin/adrimiacin

hmmm.. need to find out more on these drugs first before we even consider giving it to Aisy..

So that was all we talked about..she didn’t elaborate much on the MRI results coz I think she didn’t see the scan films..only the report.. so nevermind...

I was doing all the talking with the doctor.. Kesian hubby takleh join in coz Aisy is running here and there ..so kena main kejar2 around the clinic hehehe.. Before I left.. the doctor pat me on the back and said, “God only tests those that are strong and dear to Him”.. “Insyaallah it will all be alright”...

Hati seorang ibu... pilu.. sayu.. hopeful..punah ranah.. risau.. redha.. sedih.. bersyukur..

All I ask is for Him to bless me with sifat redha for all that He has planned for us..

Second MRI

Haluu.. Well apparently aisy punya MRI came sooner than we thought.. I tot it was going to be done in january 2014, but suddenly the hospital called me last friday.. And asked us to admit Aisy on the next Monday which was two days ago.. Coz they wanna do an MRI on 24th December 2013. Hmm ok lahh fine.. Tp yg lecehh nyer is kena admitted one day before.. Sebelum ni masuk unit rawatan harian jerr. But now new procedure, hv to stay there d day before... Oklah i tot to myself, maye its not so bad lah.. Coz they asked us to admit an the neuro building instead of tempat biase which is institut pediatrik.. Hmm ok.. So since hubby keje, i asked a favour from my mom to drop me n aisy off at HKL.. Nasib baik dia ade..

So came Monday, kitaorg pun gerak to HKL about 12.30pm.. Smp around 1.30pm, mama dropped me at the emergency untuk i buat pendaftaran.. Pastuh dah siap, i tunggu mama pusing one more round n pick me up.. So cari2 la neuro building.. Tanya sana sini.. 

Finally we found it.. Ok, so i amik brg2 n check in to the ward.. Since takleh tunggu, mama had to do another round sbb kena tunggu i amik aisy pulak from the car.. Sian tok mama, pusing2.. Huhu 

So bila dah masuk.. Hmm.. Xde aircon.. kipas jauh... Errrmmm.. I plak jenis berpeluh sakan punyerr.. Adelah bawak fan kecik letak atas table.. Tp still doesnt help.. Takpelah, Sabar jer since its only one nite.. 

This is how the ward looks like. Agak small la compared to IP.. Masa admitted, Aisy demam.. Actually dia dah demam dua hari before but temperature up n down, up n down, so i gave him paracetamol (PCM), dia kejap ok kejap panas.. I told d nurse pasal fever dia, she said she wud consult d doctor.. 

So then anaes pun dtg, this is bcoz aisy kena sedation utk buat MRI..so kalau sedation biase takleh tidokan dia.. They will give GA which i mmg nak avoid lah kan.. Too much GA for him pun no good.. Baru x sampai dua bulan lepas kena GA dua hari brturut2 kan..  So anaes tanya n explain mcm2 but of course after so many experience of aisy masuk operation theatre, loghat nyer pun dah mcm expert la kan.. Siap doctor tuh tanya i, "r u in the medical line?" Hahahahah gelak besar i.. "Having a son in this condition would somehow make u an expert" i said.. She understood lah.. So i signed the papers and she went off.. Quite a sweet lady..

Then bila dah almost mlm, fever dia getting higher n higher.. No thanks to the warm environment..nurse kata "ohh,doctor suruh tuam je dulu".. Wth?? Hes been having temperature the whole day pun xnak bagi pcm jugak? Haihhh ok fine..Dah malam, aisy pun tido, with cool fever tepek sana sini.. And i keep on tuam kepala n badan dia.. Dia tido tp skit2 merengek..tau la kan budak kalau demam camne..sian dia x cukup rest..

Ketiak kena tepek dgn cool fever.. Huhu

Kat sini they dont provide katil untuk us mommies.. Kitaorg disuruh utk tido sekatil dgn anak.. Sbb space nyer x cukup katanyer.. Tp ade gak parents yg nak bagi space kat anak dia, x selesa tido berhimpit..kesian i tgk.. Dah la letih pale otak.. Letih badan plak..

Mlm tuh mmg sgt x selesa, biaselah bila tido sekatil, kita try not to move sbb takut ganggu dia tido.. Lagi2 bila dia tgh demam.. So dapatlah tdo dalam dua jam.. In my own sweat.. Rambut dah lencun.. Haihh.. Sabar2.. Xpe2.. 

And the morning comes.. They said aisy first case.. So aisy bangun nangis2 coz lapar.. Dia kena puasa from 2am.. They took him into bilik rawatan utk masukkan line kat tangan.. Mmg i dgr jeritan batinku dia lah the whole time..

After that diaorg pass kat i chloral hydrate utk bagi kat aisy orally.. So that he sleeps by the time smp sana.. So i ingat kita tunggu ambulance to bring to the MRI centre.. Rupa2nya kena jalan sampai sana ikut lorong2 staff.. Gituuu kauuu.. Jauhhh kott..i pun trkejar2 la staff nurse yang tolak aisy.. Laju gila diaorg jalan.. Huff huff huff... Nasib baik x sompuit.. Heehe akhirnya sampai.. So bla bla bla.. Semuanya selesai..

Alhamdulillah.. Tapi diaorg kena add onn mida punya sedation.. Sbb dia dah trbgn masa baru nak start MRI.. And so everything went well.. Hubby dtg aroud noon.. So tunggu aisy bangun from sedation and menyusu tanpa muntah..

And about 3pm, we were released from the hospital..yeayy finally!! Balik rumah.. I yg lagi relief sebenarnya huahuahua.. Ok, see u in next post people!