Chemoport Catheter Removal

Today aisy just underwent the procedure to remove the catheter of his chemoport yg tercabut tuh.. 

The specialist says it usually takes 30mins to 1 hour but aisy went in at 2.30pm and came out from the room at 4.45pm.. The specialist apologised to me n hubby and showed us the whole process of the procedure taken from xray images.. Dia tunjuk that dia cucuk sana cucuk sini cucuk sana n cucuk sini baru dapat the catheter tube.. So aisy ade some minor internal bleeding bcoz of that.. Im juz glad its over and that the tube didnt reach his heart.. And the doctor was so nice.. He said, "im so happy that i could help ur child today".. Aww.. How sweet.. N he thanked us instead of kitaorg yg berterima kasih pada dia.. 

So then aisy was brought back to the ward by an ambulance.. Surprisingly he was still high after 4hours procedure tuh finish.. Usually lepas 30mins nap dia dah ok dah.. But this time, he vomitted his milk and he slept for so long.. I am quite worried.. Is is his age factor or sbb terlebih dose of general anaesthetic?? Hmm actually as im writing this, he is still sleeping.. He woke up at 8pm juz now for milk and finished 6oz of milk n didnt vomit.. Thank God.. Hopefully he will fully recover tomorrow.. Surgeon has some plans for him tomorrow.. Still dunno what it is.. So, till we meet again.. 

Emergency

Hmm.. Ape la nasib anakku.. Ayah aisy dapat rasa sesuatu menyucuk keluar dari dada dia, near his chemoport.. hmm suspect mcm sumthing wrong je ni.. thats why masa hari ct scan tuh, doctor xleh nak flush chemoport dia.. so check chemoport dia semlm kat onco ward.. Doctor suruh buat xray.. Skejap je xray.. Then tgk results, hmm mmg ramalanku benar belaka.. Tube yg sambung kat chemoport tuh dah putus.. Team surgical datang tgk, they said tube tu dah masuk dlm saluran darah.. 

So here we r today, admitted at the surgical ward.. Tgh tunggu turn to do immediate surgery.. Surgeon kata kena buat before the tube goes to his heart an into his lungs..Ya Allah.. U constantly remind me... 

However, surgeon takleh buat sbb tube tuh dah masuk dalam sangat. Hence, intervention radiologist will take over and do the procedure.. 

Its 12.50pm now.. Aisy last susu at 6.00am..nangis sampai tertido.. Lapar.. Haihhh.. Kesian anak ibu.. 

Thats all for now.. Will update once he has finished surgery.. Please pray for him.. Thank u..

Aisy's Assessment

21st October 2013... kitaorg bawak Aisy untuk ct scan... as mentioned in my previous entry.. ini adalah untuk assess progress cancer cells dia.. tapi hari ni scan jer.. results cuma boleh tahu 20th November 2013.. lambat nawww.. bila dah tau results..then only kita tau whether aisy dah cancer-free or kena continue treatment.. readers, tolong lah kami and doakan supaya Aisy cancer-free and no more treatments for the rest of his life... tak sanggup dah nak tengok Aisy membesar kat hospital..

After the procedure... Shian dia penat sangat.. Coz we also flush his chemoport but there was some problem with it.. So kena cucuk brulang ulang kali.. Nangis sampai tarik.. Sian anak ibu.. 

This coming sunday have to bring him back to HKL to check his chemoport.. Haihhh.. Hopefully all is well.. 

Aisy's Raya Aidiladha

Someone was really happy n excited to have many relatives visiting during aidiladha.. He was so excited that he forgot to sleep hahahaha... So far alhamdulillah aisy is doing well n great.. Despite having d flu and cough a week after discharge harituh.. But now after dah makan antibiotic for about a week.. Hes much better... So next week on 21st october would be his ct scan appointment.. Hopefully all goes well.. I pray everyday for him to be cancer-free for d rest of his life.. No more chemo.. No more treatments..may God show him mercy.. 

So anyway.. Here are some pics during aidiladha.. 

Last Chemo Cycle for the First Protocol

26th September 2013.. aisy admitted for 4th cycle.. tuh yg busy tuh, sbb bwk aisy untuk chemo.. huhu..so, doctor kata ni last cycle untuk first protocol dia.. after this, nak kena buat ct scan, nak tgk kalau cell2 tuh dah clear atau masih ade.. kalau ade lagi (naudzubillah)..kena la sambung dua cycle lagi tapi dengan chemo drugs yang lain daripada yg biase nie.. hmm.. risau jugak dgr..  tapi kalau cell cancer dah takde (amin).. Aisy Ezkandar cancer free!! (amin).. insyaallah.. doa doa doa doa doa doa....

So routine seperti biasa.. masuk line kat chemo port.. first day aisy okay lagi.. tapi badan panas sikit.. temperature tak kurang dari 37.0.. mesti 37.0 ke atas.. risaunya kalau dia demam.. takut kena infection ke ape.. plus kali ni dia lain sikit.. mungkin sebab dia dah nak umur setahun kan.. one more month to go.. so usually doctor kata side effects on children below one yrs old tak seberapa sgt compared dgn one year old ke atas.. so maybe bcoz lagi sebulan aisy will be one year old..kelakuan dia mmg lain.. dia jadi macam lagi aggressive.. i mmg jadi punching bag dial ah.. dia hantuk pale dia kat muka i..dia cakar i.. tampar i.. tarik rambut i.. which he usually doesn’t do lah.. so mmg this has been warned before.. patients going through chemo can sometimes act differently or badly.. mula2 mmg i upset lah tgk dia mcm ni.. tapi lama2 pasrah jelah.. nak marah pun takde guna.. budak lagi..

He also wakes up early in the morning and doesn’t sleep sampailah petang..bangun kul 530am.. petang baru nak tido..itu pun tido 30minutes jer.. hadoiii..i lah yg pening..huhuh..

And this time.. dua kali line putus.. tapi nasib baik line drip jer.. haihh.. also since i dah complain to doctor about aisy punya rashes after chemo.. doctor prescribe aisy an allergy medicine before start every chemo.. and Alhamdulillah.. after dah habis chemo.. allergy dia takde..and it helps him sleep.. so it is so much better for him to sleep through chemo sbb dia takkan gerak banyak, takut line putus masa chemo kan.. so sgt la lega..

So allergy takde...cuma dia kena gigit nyamuk on the last night, so reaction badan dia towards the gigitan tuh is not good.. so the benjot gigitan nyamuk tuh evolve to be something nastier.. slalu bila kena gigit nyamuk.. benjot n merah je kan... nih dia akan mula2 benjot n merah.. pastuh benjot jadi lagi besar.. and then the benjot akan macam ade air.. and now jadi small biji2 and merah... doctor pernah bagi cream fobian to put on these thingys..but since its quite near to his eyes.. i risau dia gosok2 and masuk mata pulak.. so i just put minyak biase jer..n hope it will clear away.. lupa plak nak amik gambar benda tuh..

Alhamdulillah after three days chemo selesai... sunday morning.. cabut line.. and pulang!! Doctor gave us the date 21st October 2013 for his ct scan and 20th November 2013 to discuss the results and what to do next.. so i guess i wont be having a lot more entries for the time being.. maybe i can update about aisy’s progress jelah..

Dear readers,

Please pray so that my boy no longer need any more chemo.. supaya dia cancer-free for life..dan membesar dengan sihat dan menjadi anak yg soleh.. amin..

Continuation of Treatment & New Allergies

Sorry dah lama dah tak hapdate.. busy with aisy of course..  so anyway, after the MIBG scan that we had to repeat for three days.. few days later.. hospital call and asked for aisy untuk sambung chemo..the third cycle.. so maksudnya masih ade lagi lah cancer cell dlm badan dia.. hmm takpelah.. nak buat camne..

So on 5 Sept 2013, we got aisy admitted to the oncology ward.. as usual.. 5 jam chemo sehari untuk tiga hari berturut2.. Doctor said he needs to do two cycles, then kena buat ct scan for evaluation of progress later on.. hmm ok.. 

Alhamdulillah aisy was doing great masa ni.. tapiiiii... since he is so active.. masa second day, line yg pasang kat chemo port dia tercabut keluar.. luka kulit dia kat area tuh.. haiyoo.. menangis lah dia... nasib baik tercabut masa masuk air jer utk hydration.. kalau masa chemo... i yg pengsan sbb mesti terbakar kulit aisy kena ubat chemo tuh.. eish naudzubillah... haiiihh anak..anak...

So doctor pun cucuk lah line baru.. so after four days in the hospital.. treatment okay..aisy pun okay.. so its time to go home.. masuklah bilik rawatan untuk cabut line dari chemo port dia.. bila cabut.. alamak.. dada dia besar sebelah.. doctor pun cuak.. haiyookk camne boleh jadi mcm ni? Doctor perasan jarum yg cucuk kat port tuh dah terkeluar sikit.. so apparently air drip tuh dah masuk ke tissue badan aisy instead of masuk ke line port tuh.. haihhh ni mesti sebab dia banyak move nie..

So the doctor kata tunggu sejam tengok whether surut ke tidak.. Alhamdulillah after an hour, mmg surut sikit lah.. then specialist pun dtg.. specialist ni plak risau lebih.. dia takut chemo port kat dlm badan dia disconnected yang membuatkan bocor and air masuk ke tissue.. ayyyookkk.. ade kemungkinan jugak tapi rasanya macam tak kot sebab dah nampak jarum line tuh terkeluar skit dah kan.. hmm but still specialist tuh insist aisy buat xray utk check the chemo port..still intact ke tidak.. baiklahhh doctorrr.. nampaknya minggu depan kena la dtg balik utk Xray pulak.. so for the mean time doctor bagi balik rumah.. tapi dia pesan kalau tetiba tempat port dia tuh merah ke.. or dia demam ke.. kena terus bawak balik ke ward ni.. “baik Doc!!”

So we went home on sunday, 8th sept 2013.. Xray appointment was given for 12th sept 2013.. pendek kata, we went for the Xray and Alhamdulillah all is well.. benda tuh still in good condition.. so betulah it is because jarum tuh dah nak terkeluar.. thats why bengkak sekejap..tissue masuk air..

Oh before that, a day lepas aisy discharge, naik rashes satu badan.. This is something new because usually bila lepas chemo sebelum ni, dia cuma naik bintik2 skit2 jer kat tangan camtuh.. Tapi ni rashes satu badan.. Menggaru jelah dia.. Besar kemungkinan this is bcoz of the blood transfusion yg dia buat masa operation hari tuh.. 3/4 darah dia diganti dgn darah org lain.. So his allergy jadi lagi teruk.. Means darah dia dulu lagi better dari darah org ni.. Hmm well what to do.. Consequences yg unavoidable.. But a day after that, rashes dia pun subside..it didnt last long la alhamdulillah.. I didnt put anything on the rashes, biar benda tuh baik sendiri.. N it did.. Kena la notify doctor during next chemo session..

Next chemo.. is scheduled three weeks after.. which is 26th Sept 2013.. see u in that entry!