Wednesday 10 September 2014

Do you care?

WELCOME SEPTEMBER!

September is here and it is time to lock and load to spread the awareness times 10..! hehe many are still not aware about the very existence of CHILDHOOD CANCER. so this month, being Childhood Cancer Awareness month, we have decided to do our very own campaign.. since i asked the cancer association about them doing anything for this childhood cancer month..and they said theyre not doing anything.. not even one lousy campaign or at least announce it ke ape ke.. very disappointing.. so, i had to take matters into my own hand but at a small scale that is…it’s not much.. buat setakat mampu jer.. huhu.. so here it is, our leaflet!..

 


my dearest fren, Khidayah, helped out by designing the leaflet.. i just kumpul2 information from many sources… this is just to create awareness.. so our mission is to distribute the leaflets to public.. at malls or by the road or something… my fren also came up with the idea to give out gold ribbons.. so i decided to buat the gold ribbons and letak dekat leaflets tuh, so that distribute sekali harung.. hehe..so my fren and i memang cramp2 kaki la mengadap ribbons tuh.. hihihihi.. i beli the supplies at Nilai 3..  and here it is! All 300pcs of it.. the sakit pinggang was worth it lah hheheheh

 

 



Although sometimes i do feel like my fight and my effort is going nowhere.. Nobody seems to care.. No one bothers.. Why can’t we get the same funding from the government that the breast cancer patients get?? Is it a double standard or because if the public don’t care about it, why should the government care right??? So in the end, there isn’t going to be anyone trying to find a cure for it.. but hey, everyone has their own problem right?Isn’t that the answer for everything now? Well.. it is all up to you..Because it’s YOU who can make the change in this world.. it all starts with YOU.. and I have decided and trying my best to be the YOU in this cause… so please help us.. help our children..

 

AWARENESS = FUNDING = CURES!

 


Aku bukanlah seorang perwira,
Gagah meng
hunus senjata,
Namun hati rela berjuang 
,
Walau dengan cara sendiri
,
Demi cinta ini
.


-Sudirman


 

 

Friday 5 September 2014

Chemo Port Removal Surgery

Alhamdulillah… after almost a year dah tak buat chemo.. akhirnya dapat jugak tarikh nak remove chemo port.. 22 August 2014.. so we r supposed to check in the day before because the surgery is at 9.00am.. i rasa takyah la cerita the whole process kot coz im sure u know the drill… ni gambar cik abg tgh usha doctor buatpe hahaha


but on 22nd August 2014… at 8.30am we were called by the OT to bring Aisy because they need him to be on standby because the patients before him dah almost done.. so we went.. i dunno why eventhough Aisy dah went through a lot of procedures..a lot of surgeries.. my heart still fills my throat when we are walking towards the operation theatre… i know it’s a simple surgery.. it’s a minor surgery.. but.. ntahlah…


So, we got dressed to go inside and waited at the waiting area.. Aisy was being Aisy la kan… slumber dia jer masuk ke OT Hall tuh.. and within seconds he was surrounded by most of the nurses, doctors n staff there.. i just looked at him from far… admiring him actually… if i were in a movie… the camera would make a slow motion effect.. first focusing on my face.. Smiling while i looked at him.. and then camera focuses on him and the people surrounding him who are laughing away looking at his little gestures and listening to his funny words.. at this moment.. my heart said “you’re really something kiddo”… i never get a lot of that kinda moment.. that’s why i can remember exactly how i felt at that time..


Anyway.. a while after that, doctor panggil suruh masuk OT… so i went to him and carried him.. he was smiling and kept on saying “bye..bye…bye..” to everyone.. and all of them were laughing and bid him goodbye.. he thought he was going jalan2.. but right when we reached the OT.. ive never seen a child’s face change like that… honestly.. ive never seen a child have that kind of expression.. he was smiling and laughing and happy and suddenly his face literally drops and i saw fear in him… i totally broke down inside… i know it sounds dramatic but i don’t lie.. this was how it was.. he looked at me like he couldn’t believe what he is seeing… he saw the operation bed.. and oh how my heart breaks.. i had to put him down so that they could gas him..and put him out… i told myself earlier that i wasn’t going to cry.. coz its just a simple surgery…! but when i saw his face and his last look before he was put under… my heart cried so hard and my tears trickled down profusely… my lil baby… my only baby…. how could i not..right?

well.. almost an hour passed and they called us… it was done.. he is now free… syukur Alhamdulillah… guess what.. being the strong boy that he is… eventhough he was still high from the anesthetic, he wanted to walk.. doesn’t want to go to sleep… haihhh.. anyway ..so that’s that.. i hope this would be a closing chapter of his cancer story.. :)






Wednesday 3 September 2014

Facebook page: Childhood Cancer Family Malaysia

Hey guys, i have newly created a facebook page called Childhood Cancer Family Malaysia. Come and join us to share knowledge, experience and just to show support. The reason why i created this group is bcoz when my son was diagnosed, i was looking for some sort of a support group online or even a place where could light my way but i found none in malaysia.. There are only groups in uk, usa n other parts of the world but not here.. And i hope this page would be able to help other parents, at least not to feel alone.. I know how it feels like.. And i wish to change that.. So come n join us..