Wednesday 25 December 2013

Second MRI

Haluu.. Well apparently aisy punya MRI came sooner than we thought.. I tot it was going to be done in january 2014, but suddenly the hospital called me last friday.. And asked us to admit Aisy on the next Monday which was two days ago.. Coz they wanna do an MRI on 24th December 2013. Hmm ok lahh fine.. Tp yg lecehh nyer is kena admitted one day before.. Sebelum ni masuk unit rawatan harian jerr. But now new procedure, hv to stay there d day before... Oklah i tot to myself, maye its not so bad lah.. Coz they asked us to admit an the neuro building instead of tempat biase which is institut pediatrik.. Hmm ok.. So since hubby keje, i asked a favour from my mom to drop me n aisy off at HKL.. Nasib baik dia ade..

So came Monday, kitaorg pun gerak to HKL about 12.30pm.. Smp around 1.30pm, mama dropped me at the emergency untuk i buat pendaftaran.. Pastuh dah siap, i tunggu mama pusing one more round n pick me up.. So cari2 la neuro building.. Tanya sana sini.. 


Finally we found it.. Ok, so i amik brg2 n check in to the ward.. Since takleh tunggu, mama had to do another round sbb kena tunggu i amik aisy pulak from the car.. Sian tok mama, pusing2.. Huhu 

So bila dah masuk.. Hmm.. Xde aircon.. kipas jauh... Errrmmm.. I plak jenis berpeluh sakan punyerr.. Adelah bawak fan kecik letak atas table.. Tp still doesnt help.. Takpelah, Sabar jer since its only one nite.. 


This is how the ward looks like. Agak small la compared to IP.. Masa admitted, Aisy demam.. Actually dia dah demam dua hari before but temperature up n down, up n down, so i gave him paracetamol (PCM), dia kejap ok kejap panas.. I told d nurse pasal fever dia, she said she wud consult d doctor.. 

So then anaes pun dtg, this is bcoz aisy kena sedation utk buat MRI..so kalau sedation biase takleh tidokan dia.. They will give GA which i mmg nak avoid lah kan.. Too much GA for him pun no good.. Baru x sampai dua bulan lepas kena GA dua hari brturut2 kan..  So anaes tanya n explain mcm2 but of course after so many experience of aisy masuk operation theatre, loghat nyer pun dah mcm expert la kan.. Siap doctor tuh tanya i, "r u in the medical line?" Hahahahah gelak besar i.. "Having a son in this condition would somehow make u an expert" i said.. She understood lah.. So i signed the papers and she went off.. Quite a sweet lady..

Then bila dah almost mlm, fever dia getting higher n higher.. No thanks to the warm environment..nurse kata "ohh,doctor suruh tuam je dulu".. Wth?? Hes been having temperature the whole day pun xnak bagi pcm jugak? Haihhh ok fine..Dah malam, aisy pun tido, with cool fever tepek sana sini.. And i keep on tuam kepala n badan dia.. Dia tido tp skit2 merengek..tau la kan budak kalau demam camne..sian dia x cukup rest..


Ketiak kena tepek dgn cool fever.. Huhu

Kat sini they dont provide katil untuk us mommies.. Kitaorg disuruh utk tido sekatil dgn anak.. Sbb space nyer x cukup katanyer.. Tp ade gak parents yg nak bagi space kat anak dia, x selesa tido berhimpit..kesian i tgk.. Dah la letih pale otak.. Letih badan plak..


Mlm tuh mmg sgt x selesa, biaselah bila tido sekatil, kita try not to move sbb takut ganggu dia tido.. Lagi2 bila dia tgh demam.. So dapatlah tdo dalam dua jam.. In my own sweat.. Rambut dah lencun.. Haihh.. Sabar2.. Xpe2.. 

And the morning comes.. They said aisy first case.. So aisy bangun nangis2 coz lapar.. Dia kena puasa from 2am.. They took him into bilik rawatan utk masukkan line kat tangan.. Mmg i dgr jeritan batinku dia lah the whole time..

After that diaorg pass kat i chloral hydrate utk bagi kat aisy orally.. So that he sleeps by the time smp sana.. So i ingat kita tunggu ambulance to bring to the MRI centre.. Rupa2nya kena jalan sampai sana ikut lorong2 staff.. Gituuu kauuu.. Jauhhh kott..i pun trkejar2 la staff nurse yang tolak aisy.. Laju gila diaorg jalan.. Huff huff huff... Nasib baik x sompuit.. Heehe akhirnya sampai.. So bla bla bla.. Semuanya selesai..



Alhamdulillah.. Tapi diaorg kena add onn mida punya sedation.. Sbb dia dah trbgn masa baru nak start MRI.. And so everything went well.. Hubby dtg aroud noon.. So tunggu aisy bangun from sedation and menyusu tanpa muntah..


And about 3pm, we were released from the hospital..yeayy finally!! Balik rumah.. I yg lagi relief sebenarnya huahuahua.. Ok, see u in next post people! 



Wednesday 18 December 2013

Neurosurgery Clinic Appointment

Yesterday was Aisy’s appointment with the neurosurgeon.. the neurosurgery clinic was at a new building..cantik jugak lah.. we arrived around 8.45am.. appointment kul 9.00am.. carik parking at the kat dlm building.. Alhamdulillah adelah spot.. tapi illegal.. ade org warning kata jgn park sbb nnt kena clamp..tapi sbb dah penuh parking, nak buat camne? And ramai yg park illegally.. takpelah..tawakal jelah..


So we reached the neurosurgery clinic at level 5.. gave aisy’s name..pastuh tunggu.. we waited for almost four hours.. haihhh.. dengan aisy jalan sana jalan sini.. jatuh terlentang..terhantuk kepala..nangis jerit2.. taknak susu.. haihhh.. sabor jelah heheheh


Finally.. about 12.40pm, we were called in.. so doctor saw Aisy.. tengok kaki dia..tengok cara dia berjalan semua okay Alhamdulillah..

Doctor went thru his CT scan.. he said as what the oncologist said lah, ade penetration to the spinal cord.. so he wants to do another MRI next month because the last MRI buat masa 9 July 2013.. dah lama dah..before surgery.. he said if MRI shows its okay, then takyah lah surgery, but if MRI shows its still there, then most prolly they want to proceed with surgery.. he actually explained the surgery quite in details..and graphic as well.. he showed us pictures of surgeries yang pernah dibuat.. Allahhh.. dia kata spine tuh dia akan bukak and kaypak ke belakang untuk buat surgery pada the layer beneath.. rasa mcm nak pengsan je tengok benda2 mcm ni.. then imagining it done unto Aisy..trus rasa cam nak mati... Allahuakhbar..i don’t want to share the pictures here coz its too gruesome to see..and not advisable for viewing..


But the thing is he said.. if surgery.. its either it will be successful, or if dia tengok tumour tuh dah melekat pada spinal cord, he wont do anything and juz close it back.. boleh? Or..if the brain punya sambungan thingy (sorry tak ingat nama) leaking or bocor, it can lead to massive infection and brain damage.. or.. u know what lah.. wow... and we as parents are supposed to decide this kind of things la kan.. antara hidup and mati... Ya Allah please guide us..

So okay.. after about 40 minutes of consultation.. he said his clinic will call to confirm the MRI date.. and new procedure, nak MRI or do any scanning, kena admitted a day before.. haiyooo... bohsannyerr.. takpelah..Aisy punya pasal.. so ape2 pun.. we have to wait till the MRI results comes out lah..which i think maybe end of January or early February.. but we will be doing an ultrasound this coming 2nd January 2013..also meet up with the oncologist for further discussion.. wish us luck and please pray for Aisy’s well-being!.. Thank you..